SUPPORT ON DIAGNOSIS

At RUN DIPG, we are deeply committed to advancing research for better treatments for DIPG and DMG. We also recognise that a diagnosis of DIPG or DMG is overwhelming and traumatic, impacting every aspect of life for patients and their families. That’s why we have partnered with Rare Cancers Australia, an organisation dedicated to supporting families on this difficult journey. Through this partnership, families facing life’s greatest challenges can access a range of essential services, including financial guidance, clinical and emotional support, peer connections, and practical resources, all aimed at providing a compassionate network to help you navigate this challenging time.

How CAN Rare Cancers
AUSTRALIA Help? FIND OUT MORE.

Rare Cancers Australia is our recommended go to resource for immediate support and information. Here’s how they help:
  • Financial resources – directing you to services and options to help manage costs.
  • Clinical support – to help you navigate the healthcare system and communicate with your healthcare teams.
  • Emotional support – to help you cope with the uncertainty.
  • Peer support – to help you connect with others walking a similar path.
  • Practical and social support – to help you maintain the best possible quality of life.

Rare Cancers Support Guide

The Rare Cancer Support Guide is designed to provide patients and their family and friends with comprehensive information to help them manage and navigate their unique cancer experience. It also incorporates the lived experience of patients and carers, and the knowledge of many health care professionals across the cancer care sector.

RARE CANCERS AUSTRALIA

Rare Cancers Australia’s mission is to improve the lives and health outcomes of all Australians living with rare, less common and complex cancers. Rare Cancers Australia offers personalized emotional, clinical and financial support at no cost.