Giang’s Story

Our beautiful Giang was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG) in June 2022.

Before diagnosis, Giang was a talented rhythmic gymnast who was busy competing at State and National competitions. She loved to crochet and made beautiful crochet bees in her free time. Painting and cooking were also her hobbies.

This cruel disease prevented her from pursuing her passion for rhythmic gymnastics but could not take away her positive spirit. Giang continued to do K-pop dances and made a number of street dance videos with her friends. When the tumour progressed and took away her right-side mobility, she still baked and made beautiful silhouette paintings on glass with her left hand.

Giang fought the greatest fight of her life against DIPG with bravery and grace for 15 months. She passed away in September 2023, FOREVER 14.

Giang made a selfless decision to donate her brain tumour for research #movingtowardsacure. She continues to fight against this monster disease, even after leaving this world.

The journey we embarked on was devastating, but Giang has taught us a lot during her journey. Her courage, kindness and positive spirit will live on. Giang loved her family deeply and will always be her family’s greatest inspiration.

In loving memory of Giang and honouring her legacy, we have set up this page to raise funds for RUN DIPG. This organisation is very close to our hearts. It was founded by Professor Matt Dun, a researcher and DIPG parent. He is one of the architects behind the combination of medicines that Giang has used under the PNOC022 clinical trial. Giang’s tumour cells are also used in the Dun Lab for research into the cure for DIPG.

It only takes a minute, and any money you can give (no matter how large or small) will go a long way to helping Giang’s legacy live on.

Donations in memory of Giang can be made here.

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