Run for RUN DIPG 2021

An unwavering, enormous and incredibly heartfelt thank you to absolutely every single person who was involved in our Run for RUN DIPG event over the weekend. We are all absolutely blown away by the support, the number of participants, the huge efforts of everyone involved and the fundraising total to date. Thank you!
Donations are still open via our Raisely page.
See a collection of images from the event here.


Evie Poolman was a fit and healthy 9 year old when she was diagnosed with a DMG brain tumour (DIPG is a form of DMG) on 29th December 2020. Over the proceeding months Evie bravely underwent 4 brain operations, stints in intensive care and 6 weeks of radiation…. with no complaints but like a true warrior Evie doubled down determined to fight her cancer.

Sadly, during a family holiday shortly after radiation, Evie started to show signs of the disease. The MRI that followed brought with it the devastating news that Evie’s cancer had spread throughout her brain – Evie did not have long left.

Evie died on June 17th, 2021, less than 6 months from diagnosis. Evie was just 9 years old. She never got the chance to reach her full potential, to live out her dreams of being a day care teacher, of being a mother and growing old with her sisters.

Tragically, this is the same story for other children diagnosed with DMG / DIPG tumours like Evie’s. Her parents Charles and Bridget were horrified to learn the stats that these children and families face and have joined the fight with other parents of warriors to shine light on this, to raise awareness, raise funds and try and find a cure for this debilitating disease so no other child or family must face the prognosis that Evie did.

In Evie’s name we ask you to dig deep and to support this incredible cause. You can donate to Evie’s fundraiser here.


Due to the pressures of COVID-19 in the Hunter and Lake Macquarie regions, we have made the difficult decision to move our Childhood Brain Cancer Awareness Day RUN for RUN DIPG to a virtual only event.
We appreciate the training and dedication of you all, in preparation for the event. Rest assured, we are encouraging all our supporters to get outside at 7:00 am on the 26th of September in COVID safe areas, to complete your personal challenge and continue the fight for the 20 beautiful Australian children diagnosed with diffuse intrinsic pontine glioma every year.
Advocacy is everything, please use #RUNforRUNDIPG as you train, explore, and Run for RUN DIPG.
Feel free to join the conversation by posting on our Facebook event and Raisely page.