RESEARCH 20202020-06-19T09:27:42+10:00


The survival of children diagnosed with cancer has dramatically improved over the last 10 years. However, for children diagnosed with diffuse intrinsic pontine glioma (DIPG), a form of diffuse midline glioma (DMG), there are no effective pharmacological or immunological treatments available; median survival remains less than 10 months. In Australia, 101 children under the age of 15 die from cancer each year. Although incidence is seemingly rare, DMG including DIPG are responsible for 25% of these deaths.

Until Josie’s diagnosis, Matt’s research was focused on blood cancers, plus breast and colon cancers to a lesser degree. His research expertise saw him secure not one, but two, Early Career Fellowships via Cancer Institute NSW (2014-2016 and 2017-2019). Of such high quality was his work throughout, he was awarded the NSW Premier’s Award for Outstanding Research Fellow in 2019. In addition to the sound scientific research this award highlights, it is also given to those who actively engage with lay and scientific audiences, advocating scientific research and the development of community and industry linkage. Connecting with donors big and small Matt’s gracious receipt of a donation to RUN DIPG via Newcastle Permanent’s annual staff’s charitable donation scheme.

If you would like to organise a similar donation program through your employer or place of business, email hello@rundipg.org. 


We also aim to support the purchase and development of world-leading infrastructure to enhance and expedite research outcomes, and to assist in moving these treatment strategies into the clinic. A significant challenge faced by Australian families fighting DIPG/DMG is the lack of available clinical trials; the Cancer Signalling Research Group, with the support of RUN DIPG, are dedicated to identifying and initiating much needed clinical trial protocols and fast-tracking these all the way along the research-to-clinic pipeline.

Specific Funding Priorities in 2020

  • Ionising radiation equipment to test strategies to improve standard of care radiotherapy – $300,000
  • Robotics equipment to test improved drug targets – $250,000
  • Support of clinical trials $100,000/pa
  • Establishment of a three year RUN DIPG International Postdoctoral Research Fellowship – $200,000/pa
  • Scholarships to support the best and brightest junior researcher $105,000/pa
  • Project support to improve standard of care treatment $100,000

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Updates from the research team

What a day! And what a team!!
Thanks to those who swam, cheered or spread the word for our 20km ‘Dive into the Pons’ event on the weekend. An awesome start to the year’s fundraising for #DIPGResearch - there’s still time to make a donation https://www.justgiving.com/campaign/takeonthelake

It’s on!! #MerewetherOceanBaths is the place to show your support for kids and families facing #DIPG. Raising awareness and funds for #DIPGResearch (fatal brainstem cancer with NO TREATMENTS), it’s a top day to swim 20km! @MattDun will bring the team home after 1pm.

Why swim 20km??
A kids' cancer without treatments is a darn good reason!

Help us fundraise, Feb 7th #MerewetherOceanBaths so we can help bring treatment options to Aussie #DIPG families

#DIPGClinicalTrial #DMGACT #DIPGResearch

Newcastle Herald@newcastleherald

Locals make waves with new DIPG trial https://ift.tt/2YBIbw6

RUNDIPG will now #DiveIntoThePons for their 20km swim relay, Feb 7th. Cheer them on at #MerewetherOceanBaths from 7am, grab a limited edition t-shirt, and celebrate afterward at @Belmont16s
#DIPG #DIPGResearch

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Together we make all the difference


PO Box 110
St Leonards NSW 1590


E | hello@rundipg.org

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