NEWS 2020 - RUN DIPG

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MAKE A DIFFERENCE

NEWS 2020Gareth2021-09-30T17:38:59+10:00

LATEST ARTICLES

Together we make all the difference

Little Lucy’s lasting legacy

Little Lucy’s lasting legacy

By Gareth|2022-04-04T13:12:19+10:00April 4th, 2022|Categories: News|

Dr Phoebe Dun and Vlad Shatrov on the Spotlight Podcast

Dr Phoebe Dun and Vlad Shatrov on the Spotlight Podcast

By Gareth|2021-11-12T07:09:53+11:00November 12th, 2021|Categories: News|

New Zealand teenager Jemima Gazley inspires support for Associate Professor Matt Dun’s DIPG research in Newcastle

New Zealand teenager Jemima Gazley inspires support for Associate Professor Matt Dun’s DIPG research in Newcastle

By Gareth|2021-11-02T10:07:23+11:00November 2nd, 2021|Categories: News|

New Zealand teenager Jemima Gazley inspires support for Associate Professor Matt Dun’s DIPG research in Newcastle

New Zealand teenager Jemima Gazley inspires support for Associate Professor Matt Dun’s DIPG research in Newcastle

By Gareth|2021-10-26T11:00:25+11:00October 26th, 2021|Categories: News|

Jemima’s Wish

Jemima’s Wish

By Gareth|2021-10-11T10:47:42+11:00October 11th, 2021|Categories: News|

Run for RUN DIPG 2021

Run for RUN DIPG 2021

By Gareth|2021-10-01T10:46:07+10:00October 1st, 2021|Categories: News|

rundipg

Today Lucas, John and Odin leave on their 855km cy

Today Lucas, John and Odin leave on their 855km cycle from @qimrberghofer to @hmriaustralia and complete the 42.2kms as part of the @gcmarathon.

Follow along in our stories to stay up to date as they take on this epic challenge in support of research. Good luck!

Help us make a giant leap for DIPG research as RUN

Help us make a giant leap for DIPG research as RUN DIPG continues moving towards a cure! We are raffling off ten consecutive vintages of Penfold's Grange from 2005 to 2014 - arguably Australia's most celebrated wine. Conservatively valued at $7,500, this collection will continue to gain value in cellaring.

This amazing prizes was donated by an anonymous well know Lake Macquarie Family. We can’t thank you enough.

Our friends at wine selectors will be hosting our live draw at 4pm Monday 1st of August.

Tickets for the raffle are $100 and are limited to a total of 375 entries. You can get yours via the link in bio.

This Saturday, the 2nd of July at 9:00 am, our tri

This Saturday, the 2nd of July at 9:00 am, our trio of RIDE DIPG legends will be leaving @qimrberghofer on their 855km cycle to Hunter Medical Research Institute (HMRI).

Supported by Paul and Brendan, and sponsored by ChemCert Training Group and @genesis_fitness_clubs, they will be advocating for hope for the 20 kids per year diagnosed with DIPG.

Donations can be made via our @realgrassrootz page

This week, we are absolutely thrilled to announce

This week, we are absolutely thrilled to announce that Ti-Anna has started as the RUN DIPG-funded Paediatric Brain Cancer nurse at John Hunter Children’s Hospital. This kind of meaningful change is only possible with the fundraising support of the incredible network.

We'd love if you could take a moment to welcome Ti-Anna!

Our GM Troy recently attended a conference of the

Our GM Troy recently attended a conference of the DIPG/DMG Collaborative, where he presented a cheque from RUN DIPG for $25,000, so that the organisation can continue to support research into this awful disease.

A huge thank you to our community, corporate partners and support network who make these donations and commitments possible.

#movingtowardsacure

Our GM Troy is currently in the US, meeting with o

Our GM Troy is currently in the US, meeting with other DMG/DIPG charities and representatives from the DIPG/DMG Collaborative.

Late last week, Troy completed a tour of University of Pennsylvania where Coach Jerry McConnell will be hosting the inaugural DIPG Awareness Night - Game 1 of their 2022 Ivy League season in September. The following day, current players and College Alumni will participate in a 5k Walkathon through the streets of Philadelphia.

A huge thank you to everyone involved at @carltonr

A huge thank you to everyone involved at @carltonrugby for throwing their support behind the Greenies Grommets program supporting RUN DIPG in 2022. Matt stopped by their final session on Saturday, where they presented a cheque for an amazing $8000 for DIPG Research.

#MovingTowardsACure

Today our General Manager, Troy Bailey, flies to P

Today our General Manager, Troy Bailey, flies to Philadelphia, USA, to meet with DMG/DIPG charities from across the globe. As a foundational member of DIPG/DMG Collaborative we believe in a united approach to advocate for research.

#MovingTowardsACure #Collaboration #DMG #DIPG

Kate and Russ' special day has arrived! All the be

Kate and Russ' special day has arrived! All the best and your generosity won't be forgotten by our community. We know @_the2montys_ and all the vendors will make it a perfect day - congratulations!

@ink_and_scratch has donated to RUN DIPG since fou

@ink_and_scratch has donated to RUN DIPG since foundation. Trent donates all our signs and stickers plus our sleek new car wrap. We are proud to have them as a #RunforRUNDIPG partner in 2022. Thank you!

#MovingTowardsACure #DMG #DIPG #partnerships

Ava can tell you how amazing the experience is at

Ava can tell you how amazing the experience is at @oakvalewildlifepark. You can make a family's day by donating your Dine and Discover vouchers to RUN DIPG. Don't let them expire on June 30th. Pay it forward, and we'll use them to fund research into childhood brain cancer. https://discover.oakvalewildlife.com.au/pay-discover-forward/

This EOFY lets turn the lights on for research! It

This EOFY lets turn the lights on for research! It costs on average $5,000 to power up a research lab. This means before a cell is explored or a lab coat worn, it will cost approximately $260,000 per year to keep our Wish Lab powered. How many weeks will you fund this EOFY to help us keep moving towards a cure?

You might have heard about the huge @genesis_fitne

You might have heard about the huge @genesis_fitness_clubs RIDE DIPG Event this year, which starts in July, but you might not be aware of just how big an effort this is. The team of cyclists are riding 820kms from Queensland Medical Research Institute to Hunter Medical Research Institute to raise vital funding for DIPG/DMG research.

It's time to meet the team who are busy training for this event, and their incredible support staff member, Brendan. A huge thank you to Brendan and ChemCert for sponsoring the event to guarantee every dollar donated will contribute to us Moving Towards A Cure.

Donations towards this mammoth event can be made via our @realgrassrootz page for the event.

As you might know, we are a charity run mostly by

As you might know, we are a charity run mostly by volunteers. There are countless people working behind the scenes that make this charity tick, and ensure we maximise the funds to go directly to medical research. Ahead of our annual Run for Run DIPG Event, we're seeking volunteers to help us ahead of the day - if you're interested in lending a hand, please get in touch with our GM Troy (troy@rundipg.org) or just shoot us a DM!

Will you join us #MovingTowardsACure by becoming a

Will you join us #MovingTowardsACure by becoming a Monthly Giver? Pledging even $20 per month makes a massive difference to our ability to fund research.

https://rundipg-org.grassrootz.com/support-dipg.../donate

Team Taira is putting in the steps, in Japan. In m

We have a range of Corporate Partnerships ready to

We have a range of Corporate Partnerships ready to run, ahead of our biggest event of the year, Run for RUN DIPG. If this is of interest to your business or organisation, please get in touch with our General Manager - Troy Bailey via troy@rundipg.org

A massive thanks and congratulations to Team Krisp

A massive thanks and congratulations to Team Krispy, who set themselves the challenge of getting as many kilometres as possible in over the course of the month and raised a massive $5,000 in the process, with all funds going towards DIPG/DMG research - and all for their beautiful friend.

There's still time to donate to this epic cause if you would like to, via their fundraiser at @realgrassrootz

We are ecstatic to announce the experienced and re

We are ecstatic to announce the experienced and respected Matt Clarke has joined our board. He isn't new to RUN DIPG, but we are proud to move his mentorship into a formal position.

Matt said, "I am super excited to join the Board because RUN DIPG is a small but important cancer charity destined for big things. Matt and Phoebe Dun are leading the way in aggressively stepping up treatment for patients and support for their families. I am here because we all need to do more for children like Josie.

"Professionally, I am passionate about building strong communities that make a real difference. Most recently, I led the spectacular growth of fellow cancer charity - Tour de Cure - as its Managing Director. Prior to that I was instrumental in the huge turnaround of morning TV show - Sunrise.

"From my work on the 2000 Olympics and Torch Relay, I know Australians are generous and want to make a difference. Organisations like RUN DIPG are vital in giving us all confidence that our time and money couldn’t be better spent."

#MovingTowardsACure

Throughout May, which is Brain Cancer Awareness Mo

Throughout May, which is Brain Cancer Awareness Month, we shared images and stories of children and families affected by DIPG. We want to thank these families for allowing us the honour of sharing these incredibly special stories and moments, and their trust in us to use the images of their children as part of our Memories in May campaign.

We've included some statistics below which highlight how devastating a DIPG diagnosis is for families. Improving the odds for children diagnosed with DIPG is our goal, and if you have the means, we welcome donations to help us in #movingtowardsacure

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OUR ADDRESS

PO Box 110
St Leonards NSW 1590

CONTACT US

E | hello@rundipg.org

P | 0409 167 504

CONNECT WITH US

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