RUN DIPG: Moving towards a cure.
RUN DIPG: Moving towards a cure.
We’re fighting to eradicate the most lethal childhood disease.
Two-year-old Josephine Laura Dun was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG) in 2018. She passed away 22 months post-diagnosis, forever four years old.
Her parents – Drs Phoebe Hindley and Matt Dun – found themselves in the tragic but unique position to make a real difference for all patients and families impacted by DIPG.
RUN DIPG: Moving towards a cure.
RUN DIPG: Moving towards a cure.
Two-year-old Josephine Laura Dun was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG) in 2018. She passed away 22 months post-diagnosis, forever four years old.
Her parents – Drs Phoebe Hindley and Matt Dun – found themselves in the tragic but unique position to make a real difference for all patients and families impacted by DIPG.
Together with DIPG families, we fight the most lethal childhood disease every second.
We are committed to raising awareness of this disease, and generating funding to support the advancement of DIPG/DMG research.
RUN DIPG is a charity dedicated to improving outcomes for patients, families and communities impacted by the deadliest form of childhood cancer – the brainstem cancer, diffuse intrinsic pontine glioma (DIPG), also known as diffuse midline glioma (DMG). We are committed to achieving this by raising awareness, empowering advocates and fundraising to support DMG/DIPG research.
What is DIPG/DMG?
“Diffuse intrinsic pontine glioma” is a brain tumour that forms in the ‘pons’, the brain’s control centre located atop the spinal cord. A type of ‘diffuse midline glioma’ (DMG) the cancer is usually diagnosed in children and young adults. There are no treatments for DIPG/DMG and so patients typically survive a matter of months following diagnosis- just ten per cent of patients survive two years, and less than one per cent survive five years.
DIFFUSE – Spread throughout an area, not well contained.
INTRINSIC – Forming from within growing through the brains network of neuron making it impossible to remove.
PONTINE – Referring to the region of the brain known as the ‘pons’
GLIOMA – A tumour arising from ‘glial’ cells, the connective material of the brain.
Help Us Move Towards A Cure
RUN DIPG have teams participating, and hosting events, all across Australia and the world, all year round. We’re putting in the hard yards behind the scenes to bring you the best year yet for our RUN DIPG events, and there’s so many ways and so many incredible ways to get involved as we move towards a cure!
Run 4 RUN DIPG
The featured event on the RUN DIPG calendar is held on the closest Sunday to Childhood Brain Cancer Awareness Day in Childhood Cancer Awareness Month.
Our 2023 event saw more than 500 participants run for RUN DIPG in our biggest and brightest event to date. The success of this day wouldn’t be possible without our amazing sponsors and supporters, with more than $200,000 raised.
